Risk of Infection in MDS

Many MDS patients fear that because of the dangerously low white blood cells, they are excessively susceptible to infections and therefore should severely restrict socialization. We do not advise you to become confined to your home for fear of catching infections. First of all, even though the white blood cells are low in the blood, they are present where they are needed, in the tissues of your body. The majority of MDS patients therefore do not show an increased susceptibility to acquiring infections.

Furthermore, research shows that most infections in patients with low white blood cells are acquired from their own bodies, such as their mouth flora. Therefore, it is more important to observe proper dental and general hygiene than to avoid socialization. Of course, you should avoid being physically close to anyone, especially children, with an obvious infection.

If you do catch an infection, having a very low white blood cell count can be potentially life-threatening and dangerous as the spread of this infection could be surprisingly rapid. In other words, a cold can turn into a nasty pneumonia overnight. Immediate attention towards seeking early medical intervention and advice is not only essential, it is life-saving. If you have a low white blood cell count, and develop a fever of 101 degrees or above, you must report to the nearest Emergency Room immediately because you may require intravenous antibiotics.